283 Can CF patient registries identify pulmonary exacerbations?
نویسندگان
چکیده
منابع مشابه
Pulmonary exacerbations as indicators of progression of lung disease in young children with CF.
The approval of ivacaftor by the European Medicines Agency (EMA) and the US Food and Drug Administration (US FDA) and the ongoing development of other drugs that target the underlying defect that causes cystic fibrosis (CF) have generated a great deal of excitement and hope for patients with CF. 2 To truly maximise the potential benefits of these drugs, they will need to be administered before ...
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Pulmonary arterial hypertension (PAH) is a progressive, angio-obliterative disease leading to increased pulmonary vascular resistance, right heart failure, and death in ,25–60% of PAH patients 5 years after diagnosis [1–3]. The estimated prevalence of PAH is 15–50 cases per million adults [4–6] and 2–16 cases per million children [7–9]. In certain at-risk groups, however, the occurrence of PAH ...
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in the number of national as well as international registries for a variety of neurological conditions, with corresponding increase in the amount of publications arising from these efforts [ref]. The registries were established for determining the natural history of a specific disease, the effectiveness of new treatments, the quality of care and/or other patient-related outcomes. The purpose of...
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ژورنال
عنوان ژورنال: Journal of Cystic Fibrosis
سال: 2014
ISSN: 1569-1993
DOI: 10.1016/s1569-1993(14)60418-5